April is Spondylitis Awareness Month, Tell Us Your Story!
April 4, 2011

Hope and Apples! Please see Kelly's Blog to learn how to participate:

http://hurtingbuthopeful.wordpress.com/2011/04/01/hope-apples/

HurtingButHopeful.org is proud to announce a partnership with TheFeedingEdge.com with the launch of a joint effort. Our “Hope & Apples” Campaign is only the first project of many to come.

ASAP and Apples For AS are proud to present our community outreach project in honor of Spondylitis Awareness Month. We have joined forces to sponsor the largest, and most powerful awareness project to date. What makes it so powerful? YOU DO. Everyone knows the power that each AS patient’s voice has. Our goal is to have you join us in teaching the world what AS is and how it affects each person’s life. We want to hear your story! By sending us your personal experiences with AS and how it has affected your life, you are taking a stand. You are standing up and telling the world that we DO have a voice, we DO exist.

April is Spondylitis Awareness Month Poster Project
April 1, 2010

As you all know, April is spondylitis awareness month. One thing I would like to accomplish is to make some informational posters and distribute them to local medical facilities. Over the next two weeks, lets try to come up with a series of poster designs. You don't have to be an artist to participate...we need good writers and fact checkers too! Download high resolution PDFs of the Dangerous Curves or A.S.A.P. posters, print, and distribute. Thanks!

Examples: (Thanks to Sandra V., Michael S., and Jessica L. for the samples)

Laughter is the Best Medicine
Announced January 1, 2010

"Life with Ankylosing Spondylitis" Photo Contest. Submit a photo that illustrates your life with AS and why you are "Hurting, but Hopeful" in the New Year. Include a short description along with your photo, to teach the world more about Ankylosing Spondylitis. Winners will be voted on by our Facebook fans in February, and the top 3 will receive the T-Shirt of their choice from our CafePress Store! Remember the ultimate prize is knowing you are raising awareness of AS.

And the winners are:

Ashley W., Zhivko Y., Rick P. and Felecia C.

Thanks to all who participated. You can see all of the contest photos here.

copyright 2010, all rights reserved.
1st Place Photo:

Ashley W. "Me with all my meds. Remicade – I couldn't add that". Ashley's photo was the favorite of our facebook fans. Some of the comments from the fans include:

"I looked at all the pictures and one I thought was way better than all the others...... It showed the reality of the meds and what it takes to make it. Loved the look on her face....LOL"

"I think arthritis in general is perceived as something we will all get to some degree as we age, seeing the younger people might get people to take more notice. "

December 23, 2009

We have set up a CafePress store front to sell ASAP logo items to benefit the Spondylitis Association of America! For each item purchased, $3 is donated directly to the SAA (CafePress gets the rest).

For those of you not familiar with CafePress, its a print on demand service that handles the production and distribution of clothing, coffee mugs, and various other items. All items in the store are CafePress base price, with a $3 mark up that goes directly to the SAA. We see this as way to improve awareness while supporting the SAA.

We currently have a variety of products including shirts, hats, mugs, and mousepads available right now. All products feature the ASAP logo. If you would like to donate relevant art for new products, please send Sean a message or post on our Facebook wall.

Some sample products are shown below.

2nd Place Photo: (3-way tie for second)

These three photos all received the same number of votes from our fans. The first is from Zhivko Y., our friend from Bulgaria who works hard to raise AS awareness around the globe. The second is from Felecia C., who writes beautiful songs and sings her heart out about AS and how it affects our lives. The last is from Rick P., whose poignant image vividly captures the trials of living with AS.

Each of the top four vote getters received a free t-shirt from our Cafe Press store. But please, check out all of the photos! These photos were submitted by real people, suffering with AS, and doing there best to make the best out of life. If you are reading this, and have AS or know someone with AS, let them know that they are not alone!

February 19, 2010

Everyone knows that laughter is the best medicine....so today we are announcing our next community outreach project. We want you to make us laugh. That's right....we would like for ASAP fans to write as many jokes about Ankylosing Spondylitis as they can. Simply post your original joke to the ASAP wall, and it will be ente...red in the "Laughter Is The Best Medicine Contest". Jokes, funny pictures, or for you artists out there, comics, or anything you like, really. The whole idea is to have some fun while we spread awareness.

For inspiration, please see Michael Smith's "Spondyville" website. No one person has done more to raise AS awareness than this man. On his site you will find a collection of witty stories and amusing anecdotes that make all who visit smile. Jokes that tickle our funny bones will be published in the Spondyville comedy cellar....where it will help to spread AS awareness while making someone hurting laugh at the same time. We will also post them on the forthcoming ASAP website. So get to work, and remember you only have until the middle of March....you can enter as many times as you like.

http://www.spondyville.com/Page73comedycellar.html

Lets all lighten up and have a good laugh!

Jokes from our fans, posted to our Facebook wall:

He was so stiff, he had to drive standing up. He was so stiff, his fabric softener was on anti-depressants. He was so stiff, when he got punched in the stomach, his back said "Ooof!" She is so stiff, even her freckles crack. (Michael S.)

I’m not stiff...I am just flexing intolerant. :) (BJ T.)

Q. Why did the spondy patient switch jobs? A. He was looking for more flexibility. (Sean R) Because they were bored stiff. (Alexandra G.) He was too stiff for the opposition, so they poached him! (Jackie J.) Too much starch in the break room (Shauna McKinney)

Why did the spondy patient by platform shoes? She was told to stand tall. (Sean R)

To promote awareness of Ankylosing Spondylitis, a new sporting event has been organised. It's to be called the Hobblympics! (Jackie J.)

I'm not handicapped, I am HANDICAPABLE!!(Rosemary H.)

Rheumatologist to spondy patient "well come on then stand up straight..." (Alexandra G.)

You know, Rheumatologists are so frustrating. You wait two months for an appointment, then they tell you, "I wish you had come to me sooner. (Kelly J.)

How can you tell the difference between a gay person and a spondylitis patient? The gay person is straight....(Tess O.)

What do you call two pot-smoking spines, a drumset, and a piano? JAZZ FUSION (Alex S.)

Q: Who won the skeleton beauty contest? Nobody (Kelly J.) I thought the winner would be the one with the curviest of curves. (Heather E.) None of the skeletons had the "guts" to enter? (Sean R)

If we call people with Dwarfism, little people....then what do we call people with A.S.......crooked people?? (Colleen T.)

Q. How many arrogant rheumatologists does it take to change a light bulb? A. One, he holds the lightbulb and the world revolves around him. (Sean R.)

WHY DID THE SPONDY PATIENT SWOP HER DAY JOB TO WORKING NIGHTS BECAUSE SHE HAS PROBLEMS GETTING UP IN THE MORNING (Carol G.)

Why did the spondy patient refuse to stand? She was fed up with her teacher telling her to stand straight (Alexandra G.)

Support the SAA while raising awareness at our Cafe Press store!
Life with Ankylosing Spondylitis Photo Contest